palliative care

palliative

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wikipedia small

Palliative care is a multidisciplinary approach to specialised medical care for people with serious illnesses. It focuses on providing patients with relief from the symptoms, pain, physical stress, and mental stress of a serious illness—whatever the diagnosis. The goal of such therapy is to improve quality of life for both the patient and the family. Palliative care is provided by a team of physicians, nurses, and other health professionals who work together with the primary care physician and referred specialists (or, for patients who don’t have those, hospital or hospice staff) to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness and can be provided along with curative treatment.

Physicians sometimes use the term palliative care in a sense meaning palliative therapies without curative intent, when no cure can be expected (as often happens in late-stage cancers). For example, tumor debulking can continue to reduce pain from mass effect even when it is no longer curative. A clearer usage is palliative, noncurative therapy when that is what is meant, because palliative care can be used along with curative or aggressive therapies.

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intro’d to the term in BJ Miller‘s ted.. on dying

our role as caregivers… people who care.. is to relieve suffering.. not to add to it

he references necessary and unnecessary suffering.. like we did with wanted and unwanted stress… to systemic change.

6 min – palliative includes end of live care but not limited to it.. it’s about comfort and living well… you don’t have to die anytime soon to benefit from palliative care

loss is one thing – regret quite another..

regret, our output – #1 regret of dying (self-talk as data)

7  min – on having the support to make decisions that are best for your life over time

most of this is on shift in perspective.. on how you can see – when you can’t change what you can see..

zen hospice project

9 min – well intended in the name of sterility… but hospitals tend to assault our senses… and the most we might hope for w/in those walls is numbness…anesthetic.. literally opposite of aesthetic..

i revere hospitals.. but we ask too much of our hospitals.. they’re places for acute trauma and treatable illnesses.. they’re no place to live/die

whoa. so much packed in here… so much resonating with the fractal of school..

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interesting.. the web defn above says: relieving pain w/o dealing w/underlying cause

when perhaps – at least the way BJ described it – and from our research/experimentation – it is the underlying cause. and we’re just not going deep enough.

perhaps (again via BJ) the idea that the problem with healthcare system is that: healthcare was designed with diseases.. not people at its center ..is the underlying problem.

and if instead we look at people.. perhaps there are 2 needs we focus on .. any age.. any illness (perhaps 99% of us now have some form of not-right ness or illness.. which is crazy/fitting .. with the supposed stats that 90% of people that go to the dr don’t have a medical problem)

perhaps the infrastructure BJ references.. needed to take on this seismic change.. is that deep. that simple. that open/all-inclusive.

re\tire\ment ness

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An interview with Ann Neumann, journalist of death
@nathanairplane @otherspoon https://t.co/Cf2PREb6jX https://t.co/5WwxEw3LQQ

Original Tweet: https://twitter.com/americamag/status/699738305584353284

slow the hell down – @otherspoon

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musicophilia

Oliver Sacks

Andrew Schulman

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@CBCToronto

Dr. Naheed Dosani is a palliative care doctor but his patients are not in hospitals — they’re in homeless shelters bit.ly/2jX2yOI

@NaheedD

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Kathy Hull.. pediatric palliative care

(http://www.ted.com/talks/kathy_hull_stories_from_a_home_for_terminally_ill_children)